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November 2001 Considering today is 11/11, I did not have good luck at Foxwoods casino earlier today. Well, I shouldn't say that. After lunch and a snack, I left with $10 less than what I came with. So as far as 'recreational gaming' is concerned, I left quite the lucky guy. But don't tell anyone, since I'm not 21 and technically I'm not allowed to play. Maybe it's the goatee. Or maybe it's the limp as though I was wounded in Desert Storm. I never seem to get carded, and I always enjoy the time I spend by myself, playing with the house's money. I justify the occasional trip to the casino by saying that in light of the fact that I can't drink, it's not smart to do drugs (more so than I'm prescribed, so to speak), and partying is tricky, I escape the world by playing a couple bucks at the craps table. Never too much, never enough. So that was my day. Big deal. I'm exhausted from waking up so early (like a giddy boy Christmas day) and standing on my feet for five hours. I feel like I spent the whole day at physical therapy, and instead of rolling the ball around the floor with my legs, I rolled the dice down the table screaming "yooooooo!" If only my health insurance could cover the dice game. I saw my doctor yesterday. The checkup lasted an amazing 40 minutes, but I think itís because we talked so much about photography and the right way to cook a turkey. Itís been close to a month (I have lost track) since I have stopped taking the Azulfidine. I feel not-so-bad (knock-on-wood!), but I credit that mostly to my swimming and lots of physical therapy (you can even see the difference in my chest and my arms!). He put it to me this way: "why do you want to bother with this pain? Take the Enbrel." He really pushed that stuff on me, like I was buying a Rolex on 42nd Street in Times Square. But not without good cause. I told him that I didnít feel that bad, and I would rather save that stuff for one day God Forbid I actually need it. His reply was calm and immediate: "well, if you take it now, you probably would never get to that point". Damn heís smart. So I left with so many thoughts. Wondering what to do. Not quite sure. I think he was under the impression I was afraid to give myself a shot twice a week. Nah, as long as no needles go into any holes that already exist in my body, Iím fine with that. But I couldnít explain to him exactly why I was so against taking that new drug. Itís just not for me, I thought. I didnít want to consider myself that sick. Iíd deal with pain 10 times worse (and many days I do), until Iíd even think about trying that. For now these NSAIDS are doing an adequate job making me more comfortable and an excellent job rotting my insides. Almost. There is nothing worse in this world than a rainy Sunday night. No less a rainy, dark, cold Sunday night after a week of holiday. But there is a glimmer of hope. For the first time in over a decade -- drumroll -- I completed my homework due Monday well in advance. That's right, nothing to do but clear my head and write down some thoughts and some feelings. It's a rare occurrence, but the type that has put me in a fairly good mood. Despite it being a rainy, dark, cold Sunday night after a long week off of school. But the week off was greatly needed. I got a chance to actually relax for about an hour or so. Relaxing my body meant relaxing my routine. When you relax your routine, everything gets all screwed up. The only regret I have is not taking my vitamins on schedule, the way I have been doing for about 3 months now. I definitely felt the ups and downs of energy because of it, which gave me even more reason to buckle down. A healthy dose of home cooking, some free laundry and a comfortable couch (in lieu of a wooden desk chair) made the week fly by. Every year I come home from college I get more and more thankful for being home. For taking showers in my own bathroom, for sleeping in my own bed, for being able to walk downstairs and open a fridge to find anything that my heart may desire. Or my stomach for that matter. It was great to drive on familiar roads, to bump into old friends and to have a chance to spend more time than I usually get a chance to with family. Boy is my family great. What an exciting Thanksgiving we had at the house. Fortunately it went over without a hitch and while we're still all in a great deal of shock because of it, it's just 51 weeks left until we do it all again. Everybody has their thing -- superstitions of one kind or another -- about their arthritis. For me, it has been my dirty, beat up Kenneth Cole boots. My favorite (and only) pair of boots (they're not cowboy boots, just regular brown boots that any cool, urban person would wear)(stress the urban) have been tucked away under my bed for close to 8 months. I haven't been able to wear them because they're so heavy, and they always hurt my back and my hips in the past whenever I wore them out. Today I put everything on the line and decided to risk it all. And I'm glad I did. To me, it's a small sign that things are on the good side, since the whole day has gone by and I am not hurting more than usual. Granted it's extraordinarily superficial, and frankly, very materialistic to be thinking in this way. But for me it's all that and more. It's a symbol that I'm going to be OK and that we all have our good days and our bad days This is one good day with the fashion looks to prove it. Baby. |
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| Author | Topic: Seth's Diary - December 2001 |
| CJ Feature Staff |
This article is for responses to Seth's December 2001 entries to his diary. http://www.creakyjoints.com/sethsdiary/200112.shtml |
| Silver Pheonix |
Hey Seth, Just for shits+giggles I tried to figure out how many pills I've popped in the past 18 years. I calculated that I've taken approximately 32,689 pills. That not even including all the stuff they dope ya up on when you have surgery. I wonder if there is someone who's popped 1,000,000 pills? Rachael |
| JulieR |
well....my humble estimate is 'bout 15 000 over 12 years. But, it's a conservative guesstimate....kinda scary. Julie. |
| dgbaker1 |
29 200 and counting. + 1 972 injections and bloodtests. |
| Silver Pheonix |
I didn't even think to count injections and bloodtests...*LOL* Rachael |
| DanyellaMarie |
I have taken 23,360 so far, and I'm only 22 years old... I have at least 50 years to go, its amazing to think how many pills will go through my system... a lot!! |
| grannyjan |
I like the pill calculator - but I hated the answer! Any one else want to kill the pills? |
| JulieR |
Nope. The sad truth is that right now the pills are my friends. Julie :) |
| JulieR |
Good for you Seth. No snow in Montreal and the weather is still erratic. Right now, I think the only thing that will make me go from feeling crappy (can I say that?) to good is a plane ticket to a sunny destination! |
| Royalblu83 |
Hi, I'm so glad that you are feeling better. I too am in New England. When I saw the snow on the ground I was amazed, and somewhat saddened. I knew that my body would not like the snow. However, I feel awesome! Maybe it is just because I'm excited for Christmas and the holidays, but I don't know. I hadn't felt that awesome for a really long time. I hope that you keep feeling better :):) |
| JulieR |
Seth, I know the feeling. Last week-end I thought this two month flare might be getting better. So I went out and didn't take a dance break after every second dance. I knew i'd pay for it but.....it's thursday, almost friday and I really feel horrible. Hope the doctor's figure why you're getting pins and needles.....but hey, one of my motto's is if you don't laugh 'bout it you'll end up crying. Have a nice holiday and good luck. J. |
| krissy |
Everyone needs to stop whining. I've had Arthritis since I was 7, and I'm only 18! I've had it for more than half of my short life. But guess what? I don't feel sorry for myself. Instead of waking up and thinking about how much pain i'm in. I wake up thinking, "damn it feels good to be alive." Don't worry everyone, just be happy! |
| JulieR |
I think that everybody deals with there arthritis differently. Krissy....Ever think that maybe we aren't whining. Maybe we're just letting the frustration out to people we think are capable of understanding. It's not your way to cope BUT we are doing what we feel is helping us. Being alive is one thing but sometimes I don't exactly feel like I'm living that much. Days, heck weeks... So, if you feel it's whining so be it. I've had this disease for thirteen years... I'm not deluding myself into thinking that I'm super woman or that everyday is a great day... Days like September 11th or days that your into so much pain that you're throwing up aren't the days that you think Life is Beautiful. So, remember this site is to support one another. So, don't forget to set the filter between your brain and fingers to ON before you make comments that might be hurtful to others. Besides we're all entitled to whining once in a while - it's human - I just muttle my way through every minute every hour. I deal with things the best I can BUT I'm entitled to my poor me moments! Julie. |
| courts |
to julie and others who enjoy 'poor me' moments (myself included!!), just don't forget that we're here for just that. =) courts |
| alexf |
Krissy, I don't know what your way of coping is but for lots of people 'whining' is a way to let out their feelings. I don't talk about the pain I have to anyone (stupidly, docters included!) and am trying to get better at it, only my boyfriend knows what I really feel. When a relative with ME recommend this site to me a month ago I was really pleased when I found it, although I do get Athritis Today and Arthritis Care magazines it still sometimes feels like I'm the only person I know with arthritis, and although I don't actually know the people writing on these boards I know that there's someone like me on the end of a keyboard (or voice software!). This site is really special and it doesn't need to be turned into a 'my arthritis/life is worse than yours' competition. It is really helpful for me to be able to talk about my feelings here and know that noone is going to judge me and think 'what's she complaining about, it doens't seem that bad to me'. So thanks everyone else who writes here. |
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